About ANZOSU
Active surveillance has consistently been demonstrated to be a powerful epidemiology tool in the study of rare diseases, and the ANZOSU is only the second nationwide active surveillance system for the study of rare eye diseases in the world.
All studies that are run through the ANZOSU will result in peer-reviewed publications and presentations at scientific meetings; the first publications likely in the 3rd year of operation.
Regular dissemination of basic data and interpretation to all those who have contributed and to other interested groups will be via a six monthly newsletter.
Operation of the ANZOSU
Each month all Ophthalmologists in Australia and New Zealand will be sent a report card or email card listing conditions currently being studied through the ANZOSU. Any patients newly diagnosed with any of the conditions listed are reported.
Each week the ANZOSU informs Investigators conducting a study of all new cases that have been reported. The Investigator then sends a brief questionnaire to the reporting Ophthalmologist requesting further de-identified information.
Investigators are responsible for collation, analysis and publication of this data, and reporting study findings annually to the ANZOSU. Please refer to the figure below (pdf version available here):
